Don't ask me what's going on because I haven't got a clue ;)  One
thing I've noticed about M.E. sufferers is we're all too damn smart
(or were) to be suffering with this Sh*t of an illness.. and we all
seem to make spelling mistakes,t akes me ages to write now.  I have
been up and down like a yoyoi with this illness.. I was always so
strong and always so smart and now I just feel pretty damn useless
with a really slow and tired brain, oh, and all alone ;--(  No,
really.  I don't even know if I have the mental functioning to find
this place again...How pathetic is that (Rhet.)?  And I used to be a
bloody optimist... Finding it really hard to come to terms with the
'my life as I knew it has gone' thing... Most of the time I just feel
screwed now, and not in a good way ;)  I miss my brain and I miss my
training and my life... Please say hello I don't bite ): Oh and my
name is Steve

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group 
> alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group. 
> I
> have been posting here since 1998 and I'd like to see this group come 
> alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve


Hi fellow Steve! :)
best things I've found for this shitty illness:
avoid strress, INCLUDING being wuund up about being sick, hard, but 
important

-gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
-Selenium and fish oil supplemnts in *normal* dosage help a tad.
-getting diagnosed with pituitary problems causing low testosterone, so 
getting testosterone replacement shots, helped a ton.
-listening to mp3 player with relaxing/cool/uplifting music helps a lot with 
mood, always have it in aorudn house when not wathing TV etc.
-AVOID stress, is said that, but avoid shit like soap operas, horrors in the 
news etc that get you down.

http://www.silverblades-suitcase.com/mecfs/mecfs.htm
my site's ME/CFS section

get well I hope, mate! :)

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group 
> alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group. 
> I
> have been posting here since 1998 and I'd like to see this group come 
> alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve


Hi fellow Steve! :)
best things I've found for this shitty illness:
avoid strress, INCLUDING being wuund up about being sick, hard, but 
important

-gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
-Selenium and fish oil supplemnts in *normal* dosage help a tad.
-getting diagnosed with pituitary problems causing low testosterone, so 
getting testosterone replacement shots, helped a ton.
-listening to mp3 player with relaxing/cool/uplifting music helps a lot with 
mood, always have it in aorudn house when not wathing TV etc.
-AVOID stress, is said that, but avoid shit like soap operas, horrors in the 
news etc that get you down.

http://www.silverblades-suitcase.com/mecfs/mecfs.htm
my site's ME/CFS section

get well I hope, mate! :)

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group 
> alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group. 
> I
> have been posting here since 1998 and I'd like to see this group come 
> alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve


Hi fellow Steve! :)
best things I've found for this shitty illness:
avoid strress, INCLUDING being wuund up about being sick, hard, but 
important

-gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
-Selenium and fish oil supplemnts in *normal* dosage help a tad.
-getting diagnosed with pituitary problems causing low testosterone, so 
getting testosterone replacement shots, helped a ton.
-listening to mp3 player with relaxing/cool/uplifting music helps a lot with 
mood, always have it in aorudn house when not wathing TV etc.
-AVOID stress, is said that, but avoid shit like soap operas, horrors in the 
news etc that get you down.

http://www.silverblades-suitcase.com/mecfs/mecfs.htm
my site's ME/CFS section

get well I hope, mate! :)

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group 
> alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group. 
> I
> have been posting here since 1998 and I'd like to see this group come 
> alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve


Hi fellow Steve! :)
best things I've found for this shitty illness:
avoid strress, INCLUDING being wuund up about being sick, hard, but 
important

-gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
-Selenium and fish oil supplemnts in *normal* dosage help a tad.
-getting diagnosed with pituitary problems causing low testosterone, so 
getting testosterone replacement shots, helped a ton.
-listening to mp3 player with relaxing/cool/uplifting music helps a lot with 
mood, always have it in aorudn house when not wathing TV etc.
-AVOID stress, is said that, but avoid shit like soap operas, horrors in the 
news etc that get you down.

http://www.silverblades-suitcase.com/mecfs/mecfs.htm
my site's ME/CFS section

get well I hope, mate! :)

On 22 Apr, 07:55, "Steven \(Silverblade\)"
 wrote:
>  wrote in message
>
> news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
> On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>
>
>
>
>
> >  wrote in message
>
> >news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> > | Don't ask me what's going on because I haven't got a clue ;)  One
> > | thing I've noticed about M.E. sufferers is we're all too damn smart
> > | (or were) to be suffering with this Sh*t of an illness.. and we all
> > | seem to make spelling mistakes,t akes me ages to write now.  I have
> > | been up and down like a yoyoi with this illness.. I was always so
> > | strong and always so smart and now I just feel pretty damn useless
> > | with a really slow and tired brain, oh, and all alone ;--(  No,
> > | really.  I don't even know if I have the mental functioning to find
> > | this place again...How pathetic is that (Rhet.)?  And I used to be a
> > | bloody optimist... Finding it really hard to come to terms with the
> > | 'my life as I knew it has gone' thing... Most of the time I just feel
> > | screwed now, and not in a good way ;)  I miss my brain and I miss my
> > | training and my life... Please say hello I don't bite ): Oh and my
> > | name is Steve
>
> > Hi Steve and welcome!
>
> > This used to be a very active NG but now all the action has moved to web
> > based groups.
> > There are many on Yahoo and MSN, but I still try and keep this group
> > alive,
> > as I much prefer the ease of use on Usenet and the plain text format.
> > However if you do want an active friendly group I recommend
> > The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> > Please do keep posting here as this was my first on-line ME support group.
> > I
> > have been posting here since 1998 and I'd like to see this group come
> > alive
> > again.
> > --
> > Spencer           Manchester  UK
>
> > Wit levels low.  Attempting to compensate.
>
> Thank you Spencer, much appreciated!
>
> I hope you are doing O.K., I find it amazing at how long so many ppl
> have been coping with this illness... my hat goes off to you,
> truly...respect.  I have had this illness for nearly two years now,
> following two years of severe long-term sleep deprivation where I was
> still living, working, and studying 'til my brain got shot to hell
> along with my body.  I had to battle to get diagnosed with the sleep
> deprivation for over a year, by which time I couldn't finish my own
> sentences or think properly, no enrgy, drooping pressured eyes,
> painful just walking short distances, you'll know all the other
> symptoms.  I had to battle the medical profession throughout, I wasn't
> given any treatment and I was told that I couldn't be admitted to a
> sleep clinic or even see a sleep consultant as there wasn't any
> funding, by the time I did and travelled an exhausting 100miles to see
> one I was told I had all the symptoms of M.E., so I then had the blood
> tests and the consultation interviews in another city then they
> confirmed it last July.  I really am trying to stay positive, but I
> really miss my life so much.  I haven't actually had 'any' help and
> because I was late being diagnosed I'm told that doesn't help my
> chances of recovery either.  I have been trying alot of things, but my
> wit levels are low also as is my motivation lately.  My father died on
> the 1st March and although my family love me alot I very rarely see
> them at all, I used to, I think they still see me as the person who
> can handle almost anything, but in truth I'm not, far from it.   But I
> am determined to find a way to get through this and recover I just
> don't know how and don't have any support or help at all.  Any help or
> advice on the best ways to cope would be welcome.
>
> Thank you again Spencer, and may the force be with you.
>
> Steve
>
> Hi fellow Steve! :)
> best things I've found for this shitty illness:
> avoid strress, INCLUDING being wuund up about being sick, hard, but
> important
>
> -gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
> -Selenium and fish oil supplemnts in *normal* dosage help a tad.
> -getting diagnosed with pituitary problems causing low testosterone, so
> getting testosterone replacement shots, helped a ton.
> -listening to mp3 player with relaxing/cool/uplifting music helps a lot with
> mood, always have it in aorudn house when not wathing TV etc.
> -AVOID stress, is said that, but avoid shit like soap operas, horrors in the
> news etc that get you down.
>
> http://www.silverblades-suitcase.com/mecfs/mecfs.htm
> my site's ME/CFS section
>
> get well I hope, mate! :)- Hide quoted text -
>
> - Show quoted text -

Thanks Steve, appreciated mate, I could probably do with some
medication to help with the symptom effects and sleep but I'm
reluctant, I think my mistrust of doctors and their lack of knowledge,
lack of actually giving a sh*t to what they prescribe and its' effects
has made me extra cautious - I don't want to be given anything that is
likely to make me feel even worse with more bad effects, I feel bad
enough as it is.  I've researched many medications but you're actually
the first person with the illness to tell me of something that works
for you.  I suppose a good doctor really helps ;)  I find just getting
to the doc's really exhausting and haven't been in a while, I lose
track just over the phone.  What a really ridiculously sickening
illness ;s
I take some vitamin and nutritional supplements intermitantly but I
will have to get some kind of routine in place.
As for stress, if I listed everything you may well laugh ;)  It really
has been that bizzare ;)  But I'm trying to be as Zen as possible.

Once again thanks for the info. (and a brilliant site)

nadh gives me considerable help.  i take 5 milligrams each morning and i 
have far more energy than i have had in years........
 wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> Don't ask me what's going on because I haven't got a clue ;)  One
> thing I've noticed about M.E. sufferers is we're all too damn smart
> (or were) to be suffering with this Sh*t of an illness.. and we all
> seem to make spelling mistakes,t akes me ages to write now.  I have
> been up and down like a yoyoi with this illness.. I was always so
> strong and always so smart and now I just feel pretty damn useless
> with a really slow and tired brain, oh, and all alone ;--(  No,
> really.  I don't even know if I have the mental functioning to find
> this place again...How pathetic is that (Rhet.)?  And I used to be a
> bloody optimist... Finding it really hard to come to terms with the
> 'my life as I knew it has gone' thing... Most of the time I just feel
> screwed now, and not in a good way ;)  I miss my brain and I miss my
> training and my life... Please say hello I don't bite ): Oh and my
> name is Steve
>

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve

wrote in message 
news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group 
> alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group. 
> I
> have been posting here since 1998 and I'd like to see this group come 
> alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July.  I really am trying to stay positive, but I
really miss my life so much.  I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either.  I have been trying alot of things, but my
wit levels are low also as is my motivation lately.  My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it.   But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all.  Any help or
advice on the best ways to cope would be welcome.

Thank you again Spencer, and may the force be with you.

Steve


Hi fellow Steve! :)
best things I've found for this shitty illness:
avoid strress, INCLUDING being wuund up about being sick, hard, but 
important

-gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
-Selenium and fish oil supplemnts in *normal* dosage help a tad.
-getting diagnosed with pituitary problems causing low testosterone, so 
getting testosterone replacement shots, helped a ton.
-listening to mp3 player with relaxing/cool/uplifting music helps a lot with 
mood, always have it in aorudn house when not wathing TV etc.
-AVOID stress, is said that, but avoid shit like soap operas, horrors in the 
news etc that get you down.

http://www.silverblades-suitcase.com/mecfs/mecfs.htm
my site's ME/CFS section

get well I hope, mate! :)

On 22 Apr, 07:55, "Steven \(Silverblade\)"
 wrote:
>  wrote in message
>
> news:1177197045.109909.62980@q75g2000hsh.googlegroups.com...
> On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>
>
>
>
>
> >  wrote in message
>
> >news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> > | Don't ask me what's going on because I haven't got a clue ;)  One
> > | thing I've noticed about M.E. sufferers is we're all too damn smart
> > | (or were) to be suffering with this Sh*t of an illness.. and we all
> > | seem to make spelling mistakes,t akes me ages to write now.  I have
> > | been up and down like a yoyoi with this illness.. I was always so
> > | strong and always so smart and now I just feel pretty damn useless
> > | with a really slow and tired brain, oh, and all alone ;--(  No,
> > | really.  I don't even know if I have the mental functioning to find
> > | this place again...How pathetic is that (Rhet.)?  And I used to be a
> > | bloody optimist... Finding it really hard to come to terms with the
> > | 'my life as I knew it has gone' thing... Most of the time I just feel
> > | screwed now, and not in a good way ;)  I miss my brain and I miss my
> > | training and my life... Please say hello I don't bite ): Oh and my
> > | name is Steve
>
> > Hi Steve and welcome!
>
> > This used to be a very active NG but now all the action has moved to web
> > based groups.
> > There are many on Yahoo and MSN, but I still try and keep this group
> > alive,
> > as I much prefer the ease of use on Usenet and the plain text format.
> > However if you do want an active friendly group I recommend
> > The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> > Please do keep posting here as this was my first on-line ME support group.
> > I
> > have been posting here since 1998 and I'd like to see this group come
> > alive
> > again.
> > --
> > Spencer           Manchester  UK
>
> > Wit levels low.  Attempting to compensate.
>
> Thank you Spencer, much appreciated!
>
> I hope you are doing O.K., I find it amazing at how long so many ppl
> have been coping with this illness... my hat goes off to you,
> truly...respect.  I have had this illness for nearly two years now,
> following two years of severe long-term sleep deprivation where I was
> still living, working, and studying 'til my brain got shot to hell
> along with my body.  I had to battle to get diagnosed with the sleep
> deprivation for over a year, by which time I couldn't finish my own
> sentences or think properly, no enrgy, drooping pressured eyes,
> painful just walking short distances, you'll know all the other
> symptoms.  I had to battle the medical profession throughout, I wasn't
> given any treatment and I was told that I couldn't be admitted to a
> sleep clinic or even see a sleep consultant as there wasn't any
> funding, by the time I did and travelled an exhausting 100miles to see
> one I was told I had all the symptoms of M.E., so I then had the blood
> tests and the consultation interviews in another city then they
> confirmed it last July.  I really am trying to stay positive, but I
> really miss my life so much.  I haven't actually had 'any' help and
> because I was late being diagnosed I'm told that doesn't help my
> chances of recovery either.  I have been trying alot of things, but my
> wit levels are low also as is my motivation lately.  My father died on
> the 1st March and although my family love me alot I very rarely see
> them at all, I used to, I think they still see me as the person who
> can handle almost anything, but in truth I'm not, far from it.   But I
> am determined to find a way to get through this and recover I just
> don't know how and don't have any support or help at all.  Any help or
> advice on the best ways to cope would be welcome.
>
> Thank you again Spencer, and may the force be with you.
>
> Steve
>
> Hi fellow Steve! :)
> best things I've found for this shitty illness:
> avoid strress, INCLUDING being wuund up about being sick, hard, but
> important
>
> -gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
> -Selenium and fish oil supplemnts in *normal* dosage help a tad.
> -getting diagnosed with pituitary problems causing low testosterone, so
> getting testosterone replacement shots, helped a ton.
> -listening to mp3 player with relaxing/cool/uplifting music helps a lot with
> mood, always have it in aorudn house when not wathing TV etc.
> -AVOID stress, is said that, but avoid shit like soap operas, horrors in the
> news etc that get you down.
>
> http://www.silverblades-suitcase.com/mecfs/mecfs.htm
> my site's ME/CFS section
>
> get well I hope, mate! :)- Hide quoted text -
>
> - Show quoted text -

Thanks Steve, appreciated mate, I could probably do with some
medication to help with the symptom effects and sleep but I'm
reluctant, I think my mistrust of doctors and their lack of knowledge,
lack of actually giving a sh*t to what they prescribe and its' effects
has made me extra cautious - I don't want to be given anything that is
likely to make me feel even worse with more bad effects, I feel bad
enough as it is.  I've researched many medications but you're actually
the first person with the illness to tell me of something that works
for you.  I suppose a good doctor really helps ;)  I find just getting
to the doc's really exhausting and haven't been in a while, I lose
track just over the phone.  What a really ridiculously sickening
illness ;s
I take some vitamin and nutritional supplements intermitantly but I
will have to get some kind of routine in place.
As for stress, if I listed everything you may well laugh ;)  It really
has been that bizzare ;)  But I'm trying to be as Zen as possible.

Once again thanks for the info. (and a brilliant site)

nadh gives me considerable help.  i take 5 milligrams each morning and i 
have far more energy than i have had in years........
 wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> Don't ask me what's going on because I haven't got a clue ;)  One
> thing I've noticed about M.E. sufferers is we're all too damn smart
> (or were) to be suffering with this Sh*t of an illness.. and we all
> seem to make spelling mistakes,t akes me ages to write now.  I have
> been up and down like a yoyoi with this illness.. I was always so
> strong and always so smart and now I just feel pretty damn useless
> with a really slow and tired brain, oh, and all alone ;--(  No,
> really.  I don't even know if I have the mental functioning to find
> this place again...How pathetic is that (Rhet.)?  And I used to be a
> bloody optimist... Finding it really hard to come to terms with the
> 'my life as I knew it has gone' thing... Most of the time I just feel
> screwed now, and not in a good way ;)  I miss my brain and I miss my
> training and my life... Please say hello I don't bite ): Oh and my
> name is Steve
>

wrote in message 
news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
| Don't ask me what's going on because I haven't got a clue ;)  One
| thing I've noticed about M.E. sufferers is we're all too damn smart
| (or were) to be suffering with this Sh*t of an illness.. and we all
| seem to make spelling mistakes,t akes me ages to write now.  I have
| been up and down like a yoyoi with this illness.. I was always so
| strong and always so smart and now I just feel pretty damn useless
| with a really slow and tired brain, oh, and all alone ;--(  No,
| really.  I don't even know if I have the mental functioning to find
| this place again...How pathetic is that (Rhet.)?  And I used to be a
| bloody optimist... Finding it really hard to come to terms with the
| 'my life as I knew it has gone' thing... Most of the time I just feel
| screwed now, and not in a good way ;)  I miss my brain and I miss my
| training and my life... Please say hello I don't bite ): Oh and my
| name is Steve

Hi Steve and welcome!

This used to be a very active NG but now all the action has moved to web 
based groups.
There are many on Yahoo and MSN, but I still try and keep this group alive, 
as I much prefer the ease of use on Usenet and the plain text format.
However if you do want an active friendly group I recommend 
The-Sleepy-Singles-Meeting-Place
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace

Please do keep posting here as this was my first on-line ME support group. I 
have been posting here since 1998 and I'd like to see this group come alive 
again.
-- 
Spencer           Manchester  UK

Wit levels low.  Attempting to compensate.

Oh, BTW I forgot to mention my MySpace page 
http://www.myspace.com/spencerprimate

"Spencer ©¿©¬"  wrote in message news:
|  wrote in message
|| Don't ask me what's going on because I haven't got a clue ;)  One
|| thing I've noticed about M.E. sufferers is we're all too damn smart
|| (or were) to be suffering with this Sh*t of an illness.. and we all
|| seem to make spelling mistakes,t akes me ages to write now.  I have
|| been up and down like a yoyoi with this illness.. I was always so
|| strong and always so smart and now I just feel pretty damn useless
|| with a really slow and tired brain, oh, and all alone ;--(  No,
|| really.  I don't even know if I have the mental functioning to find
|| this place again...How pathetic is that (Rhet.)?  And I used to be a
|| bloody optimist... Finding it really hard to come to terms with the
|| 'my life as I knew it has gone' thing... Most of the time I just feel
|| screwed now, and not in a good way ;)  I miss my brain and I miss my
|| training and my life... Please say hello I don't bite ): Oh and my
|| name is Steve
|
| Hi Steve and welcome!
|
| This used to be a very active NG but now all the action has moved to web
| based groups.
| There are many on Yahoo and MSN, but I still try and keep this group 
alive,
| as I much prefer the ease of use on Usenet and the plain text format.
| However if you do want an active friendly group I recommend
| The-Sleepy-Singles-Meeting-Place
| 
http://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FThe%2DSleepy%2DSingles%2DMeeting%2DPlace%2F%5Fjoin%2Emsnw%3F&commname=The%2DSleepy%2DSingles%2DMeeting%2DPlace
|
| Please do keep posting here as this was my first on-line ME support group. 
I
| have been posting here since 1998 and I'd like to see this group come 
alive
| again.
| -- 
| Spencer           Manchester  UK
|
| Wit levels low.  Attempting to compensate.

On 21 Apr, 20:30, "Spencer ©¿©¬"  wrote:
>  wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;)  One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now.  I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--(  No,
> | really.  I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)?  And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;)  I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru=http%3A%2F%2Fgr...
>
> Please do keep posting here as this was my first on-line ME support group.. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer           Manchester  UK
>
> Wit levels low.  Attempting to compensate.




Thank you Spencer, much appreciated!

I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect.  I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body.  I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms.  I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then ha