What are we to make of this attack on Invest in ME?OneClick has a history of 
praising a person,group or charity one moment and then attacking them the 
next.Here it is tthe turn of IiME and Dr. Byron Hyde to shift from heroes to 
villains like Dr. Shepard and The ME Association did before.Unless you 
accept the Lyme Disease/Borreliosis hypothesis promoted so heavily by One 
Click this leaves us without a single advocasy group we can trust.Spencer 
"The Pharma Gibson Cabal and Future Plans
    Posted by: "Jane Bryant" janebryant22@yahoo.co.uk janebryant22
    Date: Thu Apr 12, 2007 10:15 am ((PDT))

PERMISSION TO REPOST

Closely involved with Dr Ian Gibson MP (Labour Member
for Norwich North, pharmaceutical products and multiple
vaccines advocate) and the parliamentarian mentioned
throughout these RiME letters published in the item below,
is the UK charity Invest in ME (IiME). The IiME charity
has become globally notorious for deliberately promulgating
serious misinformation throughout the ludicrous Gibson
'Inquiry' into 'CFS/ME' and extensively promoting the
highly flawed Gibson Report.

Currently heavily publicising the mendacious and
litigious Dr Gibson through its literature and on its
website as a keynote speaker at its conference in May,
the IiME charity has formally joined the queue of the
appalling UK ME/CFS charities that compromise patients
best interests on the one hand, whilst demanding money
from the very same patients to keep the structure afloat
on the other. See UK Invest in ME Charity - Stock Plummets
(http://tinyurl.com/2yfabd).

Regarding the Pharma Gibson Cabal and its activities,
herewith selected items for your consideration:

* The IiME charity is attempting to get the Nightingale
Definition of ME (http://tinyurl.com/yugxcp) produced
by a one man band elderly General Practioner (Byron Hyde)
taken up in the UK as opposed to the Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome: Clinical
Working Case Definition, Diagnostic and Treatment
Protocols (ME/CFS Canadian Guidelines http://tinyurl.com/br8oa)
that have been produced by international consensus,
government funded and activated by a group of physicians
who have between them treated/diagnosed over 20,000 ME/CFS
labelled patients worldwide. This, according to the
charity Invest in ME, is the master plan. This will not
fly. It simply muddies the waters further, deliberately so.
This is doubtless what Gibson and his cronies intend.

* The promotion by a very few (Dr Ian Gibson/Malcolm
Hooper/Byron Hyde/IiME charity) of the flawed Nightingale
Definition of ME produced solo by one GP in Canada with
no international consensus of any kind will upset many.
The Definition Wars will create a schism within the ME/CFS
community, precisely as Gibson and the psychiatric lobby
intend. This is a very smart move on the part of Gibson,
who has done so much damage with his opinion piece Gibson
Report. See The One Click Group Report - The Gibson 'Inquiry'
(http://tinyurl.com/24wgag). So many have worked so hard on
the ME/CFS Canadian Guidelines in the UK, the United States,
Australia, Canada, New Zealand, Germany, France et al.
They will not jump ship in the middle to benefit Dr Hyde
et al to earn income on the back of a very flawed
Definition that will not be accepted by the medical
profession.

* The Nightingale Definition of ME will never be accepted
by the medical profession/Department of Health etc., in
the UK because it completely lacks any kind of government
backing (as opposed to the ME/CFS Canadian Guidelines) and
 has not been developed by international consensus.

* Nowhere in Hyde's Nightingale Definition is Lyme
Disease/Borreliosis even mentioned. Since x countless
thousands (in the United States, hundreds of thousands)
of previously ME/CFS labelled patients are now testing
positive for Lyme Disease/Borreliosis this is a gargantuan
crashing oversight that will ensure that this Definition
is not taken up by patients. It will moreover be castigated
for this omission alone, let alone all the rest. Hyde has
done good work in the past, but his singular vested
interests involvement in UK ME/CFS politics and the way
in which this has been done is not a pretty sight.

* How are the two new ME/CFS centres currently being
plugged as a proposition by the IiME charity using the
Nightingale Definition of ME to be paid for? It is very
unlikely that the proposed ME/CFS centres will receive
government funding. Especially since the government has
already backed a national network of induction centres
for ME/CFS patients that are almost exclusively staffed
by psychiatrists and psychologists, promoting the
scientifically fraudulent PACE trial at vast taxpayer
expense. The suggestion of these new centres is a highly
ambitious proposal that would take many years to come to
fruition, if indeed it could be realised at all. In the
meantime, the desperate need for the implementation of a
gold standard definition for clinical and research
purposes remains.

* Dr Hyde's proposal and this definition is apparently
based on body mapping that at the last count, cost £5,000
per person. Who is going to fund this? It certainly will
not be the UK National Health Service (NHS). Few will be
 able to afford to access privately the level of specialist
testing that the Nightingale Definition recommends.

* Once the body mapping has been completed, just what
treatment, if any, is proposed? This is an issue that
has been studiously avoided by all.

Dr Ian Gibson, with his dedicated links to the
pharmaceutical companies, GM crops, Sense About Science
and The Science Media Centre has done a very fine job in
achieving absolutely nothing concrete that will have
immediate beneficial impact as a result his farcical
Gibson 'Inquiry' into 'CFS/ME'. What he and his fellow
travellers are proposing will create enormous dissent,
will be only for the rich, provides no treatment that
we can detect and will provide a gargantuan increase in
the income of many of those involved. It appears to
focus on the impossible to achieve with much noise and
little light, deliberately so. This represents yet another
sorry chapter in the history of ME/CFS that provides
absolutely none of the actions that are required to help
patients so badly NOW. We repeat: The desperate need for
the implementation of a gold standard definition for
clinical and research purposes remains.

The One Click Group

************************************************************
This information is available on THE ONE CLICK GROUP website
http://www.theoneclickgroup.co.uk "
________________________________________________________________________
This news from Ausralia seems positive though.
"Study Of ME/CFS Held Back By Bias
    Posted by: "Jane Bryant" janebryant22@yahoo.co.uk janebryant22
    Date: Thu Apr 12, 2007 4:36 pm ((PDT))

PERMISSION TO REPOST

The Sydney Morning Herald

Victims give clues to the answers
http://tinyurl.com/2kclhc

April 12, 2007

The development of an autopsy protocol may help
unlock some of the mysteries of chronic fatigue
syndrome, writes Julie Robotham.

UNDER the microscope, it could not have been clearer.
Sophia Mirza's brain and spinal fluid showed indisputable
evidence of inflammation and cell death.

The discovery, by the neurologist Abhijit Chaudhuri and a
neuropathologist colleague, marked the first time a serious
abnormality confined to the central nervous system had
been identified at the post-mortem examination of a
patient whose principal diagnosis was chronic fatigue
syndrome.

In turn, that ensured the 32-year-old became the first
person in Britain to have the syndrome - also known as
myalgic encephalomyelitis - recorded as the cause of her
death.

In Adelaide last month, Chaudhuri and specialists from all
over the world took the first steps towards developing
an autopsy protocol that would allow samples to be
consistently collected and analysed from the bodies of
people who die, like Mirza, after a long battle with
the syndrome. These would form the basis of an
international tissue bank in an attempt to shed light
on what goes wrong in the baffling condition, which
often strikes young and previously healthy individuals.
It could help "establish the condition as a valid
neurological problem", Chaudhuri says, and might lead
to treatments.

Chaudhuri, a consultant neurologist from the Essex
Centre for Neurological Sciences, says the protocol
is intended to allow non-specialist pathologists to
collect and preserve samples, which could then be
examined by a neuropathologist. The move comes amid
concern that brain and spinal cord tissues which might
shed light on the disorder are being lost because
pathologists do not appreciate their significance.

In Mirza's case, and in another autopsy on a young
British man, "there was no way [their illness] could
be explained by a primary psychiatric condition",
Chaudhuri says, referring to a widespread assumption
that the condition - which typically begins after a
viral illness and is estimated to affect up to 140,000
Australians - is related to mental stress.

Daniel Peterson, an American physician who specialises
in chronic fatigue syndrome, says its name has allowed
it to be trivialised. "These are very complex patients
to understand," he says. "We've been held back by biases."

Peterson, who is establishing a research centre at the
University of Nevada, says he is most interested in
forms of the condition that arise after recognised
infections, which seem to trigger immune disturbances.

The specialists' meeting in Adelaide was organised by
Christine Hunter, via the Alison Hunter Memorial
Foundation, which Hunter formed after the death a decade
ago of her teenage daughter, who had chronic fatigue
syndrome. As the protocol is formalised, the group will
seek endorsement from experts around the world, she says, to
accelerate its acceptance by the wider medical community.

Elizabeth Salisbury, a senior staff specialist in
tissue pathology at Royal North Shore Hospital, says
formal guidelines would encourage those conducting
autopsies to retain appropriate tissues for later
genetic, antibody or biochemical testing.

"One of the difficulties with a disease like CFS is
[it] is very much an emerging science," says Salisbury,
who is not involved in the protocol's development. "We
don't necessarily understand all the pathological
changes that account for the signs and symptoms."

Salisbury says families of patients who die after
having chronic fatigue syndrome or other complex, elusive
disorders usually support tissue removal. "They really
do want the answers," she says.

Colin Neathercoat, a director of the advocacy group
ME/CFS Australia, says the cost of supporting patients
with long-term disability from the syndrome is enormous,
and more funding is needed for research into its origins
and possible treatments.

"We would desperately like to see government engage in
this growing problem and recognise its impact on the
Australian economy, let alone its impact on sufferers,"
he says."Reposted with comments by Spencer

What are we to make of this attack on Invest in ME?OneClick has a history of 
praising a person,group or charity one moment and then attacking them the 
next.Here it is tthe turn of IiME and Dr. Byron Hyde to shift from heroes to 
villains like Dr. Shepard and The ME Association did before.Unless you 
accept the Lyme Disease/Borreliosis hypothesis promoted so heavily by One 
Click this leaves us without a single advocasy group we can trust.Spencer 
"The Pharma Gibson Cabal and Future Plans
    Posted by: "Jane Bryant" janebryant22@yahoo.co.uk janebryant22
    Date: Thu Apr 12, 2007 10:15 am ((PDT))

PERMISSION TO REPOST

Closely involved with Dr Ian Gibson MP (Labour Member
for Norwich North, pharmaceutical products and multiple
vaccines advocate) and the parliamentarian mentioned
throughout these RiME letters published in the item below,
is the UK charity Invest in ME (IiME). The IiME charity
has become globally notorious for deliberately promulgating
serious misinformation throughout the ludicrous Gibson
'Inquiry' into 'CFS/ME' and extensively promoting the
highly flawed Gibson Report.

Currently heavily publicising the mendacious and
litigious Dr Gibson through its literature and on its
website as a keynote speaker at its conference in May,
the IiME charity has formally joined the queue of the
appalling UK ME/CFS charities that compromise patients
best interests on the one hand, whilst demanding money
from the very same patients to keep the structure afloat
on the other. See UK Invest in ME Charity - Stock Plummets
(http://tinyurl.com/2yfabd).

Regarding the Pharma Gibson Cabal and its activities,
herewith selected items for your consideration:

* The IiME charity is attempting to get the Nightingale
Definition of ME (http://tinyurl.com/yugxcp) produced
by a one man band elderly General Practioner (Byron Hyde)
taken up in the UK as opposed to the Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome: Clinical
Working Case Definition, Diagnostic and Treatment
Protocols (ME/CFS Canadian Guidelines http://tinyurl.com/br8oa)
that have been produced by international consensus,
government funded and activated by a group of physicians
who have between them treated/diagnosed over 20,000 ME/CFS
labelled patients worldwide. This, according to the
charity Invest in ME, is the master plan. This will not
fly. It simply muddies the waters further, deliberately so.
This is doubtless what Gibson and his cronies intend.

* The promotion by a very few (Dr Ian Gibson/Malcolm
Hooper/Byron Hyde/IiME charity) of the flawed Nightingale
Definition of ME produced solo by one GP in Canada with
no international consensus of any kind will upset many.
The Definition Wars will create a schism within the ME/CFS
community, precisely as Gibson and the psychiatric lobby
intend. This is a very smart move on the part of Gibson,
who has done so much damage with his opinion piece Gibson
Report. See The One Click Group Report - The Gibson 'Inquiry'
(http://tinyurl.com/24wgag). So many have worked so hard on
the ME/CFS Canadian Guidelines in the UK, the United States,
Australia, Canada, New Zealand, Germany, France et al.
They will not jump ship in the middle to benefit Dr Hyde
et al to earn income on the back of a very flawed
Definition that will not be accepted by the medical
profession.

* The Nightingale Definition of ME will never be accepted
by the medical profession/Department of Health etc., in
the UK because it completely lacks any kind of government
backing (as opposed to the ME/CFS Canadian Guidelines) and
 has not been developed by international consensus.

* Nowhere in Hyde's Nightingale Definition is Lyme
Disease/Borreliosis even mentioned. Since x countless
thousands (in the United States, hundreds of thousands)
of previously ME/CFS labelled patients are now testing
positive for Lyme Disease/Borreliosis this is a gargantuan
crashing oversight that will ensure that this Definition
is not taken up by patients. It will moreover be castigated
for this omission alone, let alone all the rest. Hyde has
done good work in the past, but his singular vested
interests involvement in UK ME/CFS politics and the way
in which this has been done is not a pretty sight.

* How are the two new ME/CFS centres currently being
plugged as a proposition by the IiME charity using the
Nightingale Definition of ME to be paid for? It is very
unlikely that the proposed ME/CFS centres will receive
government funding. Especially since the government has
already backed a national network of induction centres
for ME/CFS patients that are almost exclusively staffed
by psychiatrists and psychologists, promoting the
scientifically fraudulent PACE trial at vast taxpayer
expense. The suggestion of these new centres is a highly
ambitious proposal that would take many years to come to
fruition, if indeed it could be realised at all. In the
meantime, the desperate need for the implementation of a
gold standard definition for clinical and research
purposes remains.

* Dr Hyde's proposal and this definition is apparently
based on body mapping that at the last count, cost £5,000
per person. Who is going to fund this? It certainly will
not be the UK National Health Service (NHS). Few will be
 able to afford to access privately the level of specialist
testing that the Nightingale Definition recommends.

* Once the body mapping has been completed, just what
treatment, if any, is proposed? This is an issue that
has been studiously avoided by all.

Dr Ian Gibson, with his dedicated links to the
pharmaceutical companies, GM crops, Sense About Science
and The Science Media Centre has done a very fine job in
achieving absolutely nothing concrete that will have
immediate beneficial impact as a result his farcical
Gibson 'Inquiry' into 'CFS/ME'. What he and his fellow
travellers are proposing will create enormous dissent,
will be only for the rich, provides no treatment that
we can detect and will provide a gargantuan increase in
the income of many of those involved. It appears to
focus on the impossible to achieve with much noise and
little light, deliberately so. This represents yet another
sorry chapter in the history of ME/CFS that provides
absolutely none of the actions that are required to help
patients so badly NOW. We repeat: The desperate need for
the implementation of a gold standard definition for
clinical and research purposes remains.

The One Click Group

************************************************************
This information is available on THE ONE CLICK GROUP website
http://www.theoneclickgroup.co.uk "
________________________________________________________________________
This news from Ausralia seems positive though.
"Study Of ME/CFS Held Back By Bias
    Posted by: "Jane Bryant" janebryant22@yahoo.co.uk janebryant22
    Date: Thu Apr 12, 2007 4:36 pm ((PDT))

PERMISSION TO REPOST

The Sydney Morning Herald

Victims give clues to the answers
http://tinyurl.com/2kclhc

April 12, 2007

The development of an autopsy protocol may help
unlock some of the mysteries of chronic fatigue
syndrome, writes Julie Robotham.

UNDER the microscope, it could not have been clearer.
Sophia Mirza's brain and spinal fluid showed indisputable
evidence of inflammation and cell death.

The discovery, by the neurologist Abhijit Chaudhuri and a
neuropathologist colleague, marked the first time a serious
abnormality confined to the central nervous system had
been identified at the post-mortem examination of a
patient whose principal diagnosis was chronic fatigue
syndrome.

In turn, that ensured the 32-year-old became the first
person in Britain to have the syndrome - also known as
myalgic encephalomyelitis - recorded as the cause of her
death.

In Adelaide last month, Chaudhuri and specialists from all
over the world took the first steps towards developing
an autopsy protocol that would allow samples to be
consistently collected and analysed from the bodies of
people who die, like Mirza, after a long battle with
the syndrome. These would form the basis of an
international tissue bank in an attempt to shed light
on what goes wrong in the baffling condition, which
often strikes young and previously healthy individuals.
It could help "establish the condition as a valid
neurological problem", Chaudhuri says, and might lead
to treatments.

Chaudhuri, a consultant neurologist from the Essex
Centre for Neurological Sciences, says the protocol
is intended to allow non-specialist pathologists to
collect and preserve samples, which could then be
examined by a neuropathologist. The move comes amid
concern that brain and spinal cord tissues which might
shed light on the disorder are being lost because
pathologists do not appreciate their significance.

In Mirza's case, and in another autopsy on a young
British man, "there was no way [their illness] could
be explained by a primary psychiatric condition",
Chaudhuri says, referring to a widespread assumption
that the condition - which typically begins after a
viral illness and is estimated to affect up to 140,000
Australians - is related to mental stress.

Daniel Peterson, an American physician who specialises
in chronic fatigue syndrome, says its name has allowed
it to be trivialised. "These are very complex patients
to understand," he says. "We've been held back by biases."

Peterson, who is establishing a research centre at the
University of Nevada, says he is most interested in
forms of the condition that arise after recognised
infections, which seem to trigger immune disturbances.

The specialists' meeting in Adelaide was organised by
Christine Hunter, via the Alison Hunter Memorial
Foundation, which Hunter formed after the death a decade
ago of her teenage daughter, who had chronic fatigue
syndrome. As the protocol is formalised, the group will
seek endorsement from experts around the world, she says, to
accelerate its acceptance by the wider medical community.

Elizabeth Salisbury, a senior staff specialist in
tissue pathology at Royal North Shore Hospital, says
formal guidelines would encourage those conducting
autopsies to retain appropriate tissues for later
genetic, antibody or biochemical testing.

"One of the difficulties with a disease like CFS is
[it] is very much an emerging science," says Salisbury,
who is not involved in the protocol's development. "We
don't necessarily understand all the pathological
changes that account for the signs and symptoms."

Salisbury says families of patients who die after
having chronic fatigue syndrome or other complex, elusive
disorders usually support tissue removal. "They really
do want the answers," she says.

Colin Neathercoat, a director of the advocacy group
ME/CFS Australia, says the cost of supporting patients
with long-term disability from the syndrome is enormous,
and more funding is needed for research into its origins
and possible treatments.

"We would desperately like to see government engage in
this growing problem and recognise its impact on the
Australian economy, let alone its impact on sufferers,"
he says."Reposted with comments by Spencer