Has anyone developed this facial scarring while having CFS/ME.  I
developed these ulcers in Sept. all over my tongue, we thought ok a
virus.  Then we thought ok, the newest  drugs that I got on so I got
off of them.  Wasn't any of those.  Then in Nov. these cracks started
in the corners of my mouth and came out onto my face the size of
dimes.   Went to Derm. and she said that it was Purigo Nodularis and
didn't say much about it.  I just found a  board at Ez Boards and they
talk about PN with CFS/ME, it's awful.  It's on my face and not
contagious and it's awful.  The itching is about to drive me under.
And I do not know why I have both oral ulcers and hives and Purigo
Nodularis and hives just own my face.  Does this suggest to you that I
am allergic to some  food or additive, since that is where it goes in?
I had an allergist that I wanted to see deny me that right and I
wasn't rude or mean, he just said it's not an allergy go back to the
Derm.  The Derm. refused to see me and said I needed to go to our
Downtown Research Hospital.  I'm asking for symptomatic treatment
because everyone knows there is no specific treatment for CFS/ME and
they can tell what's going on without looking upon my face?  Has
anyone had this happen to them as well?  I don't get it.  <sigh>
Blessings, I look forward to your thoughts and weighing in on these
types of subjects.  Quite honestly, I think they were once again
discrimating against a CFS/ME patient.  My MD believes in it, but they
don't.  That's what I get.  Blessings~~Beauty

Has anyone developed this facial scarring while having CFS/ME.  I
developed these ulcers in Sept. all over my tongue, we thought ok a
virus.  Then we thought ok, the newest  drugs that I got on so I got
off of them.  Wasn't any of those.  Then in Nov. these cracks started
in the corners of my mouth and came out onto my face the size of
dimes.   Went to Derm. and she said that it was Purigo Nodularis and
didn't say much about it.  I just found a  board at Ez Boards and they
talk about PN with CFS/ME, it's awful.  It's on my face and not
contagious and it's awful.  The itching is about to drive me under.
And I do not know why I have both oral ulcers and hives and Purigo
Nodularis and hives just own my face.  Does this suggest to you that I
am allergic to some  food or additive, since that is where it goes in?
I had an allergist that I wanted to see deny me that right and I
wasn't rude or mean, he just said it's not an allergy go back to the
Derm.  The Derm. refused to see me and said I needed to go to our
Downtown Research Hospital.  I'm asking for symptomatic treatment
because everyone knows there is no specific treatment for CFS/ME and
they can tell what's going on without looking upon my face?  Has
anyone had this happen to them as well?  I don't get it.  <sigh>
Blessings, I look forward to your thoughts and weighing in on these
types of subjects.  Quite honestly, I think they were once again
discrimating against a CFS/ME patient.  My MD believes in it, but they
don't.  That's what I get.  Blessings~~Beauty

Has anyone developed this facial scarring while having CFS/ME.  I
developed these ulcers in Sept. all over my tongue, we thought ok a
virus.  Then we thought ok, the newest  drugs that I got on so I got
off of them.  Wasn't any of those.  Then in Nov. these cracks started
in the corners of my mouth and came out onto my face the size of
dimes.   Went to Derm. and she said that it was Purigo Nodularis and
didn't say much about it.  I just found a  board at Ez Boards and they
talk about PN with CFS/ME, it's awful.  It's on my face and not
contagious and it's awful.  The itching is about to drive me under.
And I do not know why I have both oral ulcers and hives and Purigo
Nodularis and hives just own my face.  Does this suggest to you that I
am allergic to some  food or additive, since that is where it goes in?
I had an allergist that I wanted to see deny me that right and I
wasn't rude or mean, he just said it's not an allergy go back to the
Derm.  The Derm. refused to see me and said I needed to go to our
Downtown Research Hospital.  I'm asking for symptomatic treatment
because everyone knows there is no specific treatment for CFS/ME and
they can tell what's going on without looking upon my face?  Has
anyone had this happen to them as well?  I don't get it.  <sigh>
Blessings, I look forward to your thoughts and weighing in on these
types of subjects.  Quite honestly, I think they were once again
discrimating against a CFS/ME patient.  My MD believes in it, but they
don't.  That's what I get.  Blessings~~Beauty