Myreader.co.uk  
uk news, chat and community
   home   |   control panel login   |   archive   |  
 
people
adoption.misc
adoption.searching
bdsm
bodyart
consumers
consumers.ebay
crossdressing
dead
deaf
disability
disability.bikers
ex-forces
fathers
gothic
health
parents
parents.pregnancy
polyamorous
sf-fans
silversurfers
support.arthritis
support.cfs-me
support.depression
support.epilepsy
support.mental-health
support.mult-sclerosis
teens
  
 
date: Mon, 18 Dec 2006 12:37:22 -0000,    group: uk.people.support.cfs-me        back       
How To Solve A Problem Like ME?   
PERMISSION TO REPOST
>
> We publish today news of the screening of the most
> excellent Lyme Disease/Borreliosis documentary.
> Below this piece, we also publish a short comparison
>
> chart of ME/CFS symptoms from the Canadian
> Guidelines
> and Lyme Borreliosis symptoms from the ILADS
> Guidelines
> on the website. They make for a very interesting
> comparison as we are sure you will all agree.
>
> (Note to One Click Yahoo members:  This item can
> only
> be seen in full on the website as we cannot do
> comparison tables on Yahoo, so please view this
> entire item on http://www.theoneclickgroup.co.uk)
>
>
*****************************************************
> This item is available on THE ONE CLICK GROUP
> website
> http://www.theoneclickgroup.co.uk
________________________________________________________________________

> > >  Ian Gibson MP Goes Berserk, Litigation
> Threatened
> http://tinyurl.com/yncn5o
> Write to Ian Gibson MP at:
> gibsoni@parliament.uk
> [gibsoni(at)parliament.uk]
> Tel: 0207 219 3367

> > > Read: How To Solve A Problem Like ME/CFS:
> Why The Gibson Report Has Failed Patients
> http://tinyurl.com/ydznxy
> **********************
>
> GSRME: Summary, meeting 11 December 2006
>
> The litigious (don't whatever you do, ask me about
> the 'inquiry' evidence) Dr Ian Gibson MP chaired a
> committee meeting for the Group on Scientific
> Research
> into ME at Portcullis House and has published a
> Meeting Summary (http://tinyurl.com/yxeu74).
>
> Much of the information covered in the summary is
> already well known,and has already been covered,
> but some bears remark. We make comment below on
> the following quotes:
>
> 1. "Dr Gibson's office would continue to provide
> responses to Inquiry queries, usually within 10-15
> working days."
>
> This must mean that Gibson is prepared to answer
> the questions posed in the Evidence Email
> (http://tinyurl.com/y67llx), over which he
> threatened litigation rather than answer, in six
> day's time at the latest, the 19th December. We
> very much look forward to Dr Gibson's answers to
> the evidence in relation to each of the seven
> questions. Until the answers arrive no later that
> the 19th December, the One Click Evidence Header
> on the website stands. Gibson's office has been
> responding to the vast majority of questions posed
> quite quickly, but not these. We wonder why that
> it is? :0)
>
> 2. "The Group discussed how the report had been
> received and agreed that the response had been
> overwhelmingly positive."
>
> The political spin and manipulation that engendered
> this positive response is covered in the One Click
> News Archives Nos. 1384, 1382, 1376, 1368. It is
> really disgraceful. The manipulative facts are the
> facts with the events orchestrated by a mendacious,
> litigious bully of an MP no less attempting with
> cronies to engender positive response to a highly
> flawed document under false pretences.
>
> 3. "The Group discussed information from the CFS
> (Chronic Fatigue Syndrome) Research Foundation
> which indicated scientists are very reluctant to
> get involved in the ME field. It is a very difficult
>
> area to make progress in and young scientists are
> often not keen to pursue it. Therefore the Group
> felt getting research commissioned must be a
> priority."
>
> What the Gibson Group fails to point out, despite
> that copious amount of high class evidence provided
> to it for over one year, is that the *reason* that
> scientists have been reluctant to enter this field
> is because of the overwhelming influence on the
> psychiatric lobby that have already been awarded
> £11.1m for their endeavours and are about to be
> awarded a further £180m, courtesy of NICE. It is a
> brave young researcher that goes against that
> particular psychiatric steam roller when so much
> money and power has been given to one side and
> clearly the academic bread is buttered only with
> the psychosocial. The Wessely influence has been a
> career breaker for many for long.
>
> 4. "The Group agreed to contact John Bell and Colin
> Blakemore (of the Academy of Medical Sciences and
> the
> Medical Research Council) to discuss forming a
> review
> panel of independent medical experts who are not
> psychiatrists and not already connected to ME who
> could objectively review the existing research."
>
> This one above needs to be watched very closely
> indeed.
>
> We leave you with this quote from Lara in her simply
>
> excellent paper, 'How To Solve A Problem Like
> ME/CFS:
> Why The Gibson Report Has Failed Patients'
> (http://tinyurl.com/ydznxy) that says:
>
> "Tackling the inaccuracies in the Gibson Report
> must be the task of the century. Having read it I
> have struggled to think of a succinct way to sum up
> its enormous failings.... One can now only hope that
>
> the Gibson report has not done more harm than good
> and that future research will include testing for
> bacterial and viral infections in ME/CFS patients,
> a good part of which could be achieved using the
> £180 million earmarked for CBT/GET therapies. One
> thing is certain, in any judicial review going
> forward, a vigorous campaign for testing of
> infectious diseases must be kept up. Patients
> simply do not have another decade of their lives
> to give up to tail-chasing, closed-minded and
> flawed research and treatment approaches in ME/CFS."
>
> Dr Gibson has distinguished himself in the last
> few days with the most extraordinary unprofessional
> behaviour (The Gibson Tape - Lies, Damned Lies) over
>
> his CFS/ME unofficial 'inquiry' that is one of the
> blackest, come-back-to-haunt-you marks on his
> political escutcheon to date.
>
> The One Click Group
>
>
************************************************************
> This information is available on THE ONE CLICK GROUP
> website
> http://www.theoneclickgroup.co.uk
date: Mon, 18 Dec 2006 12:37:22 -0000   author:   Spencer ©¿©¬

Google
 
Web myreader.co.uk


    COPYRIGHT 2007, YARDI TECHNOLOGY LIMITED, ALL RIGHT RESERVE  |   contact us