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group : uk.people.support.cfs-me      view archive
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Link to TV Clip on somebody with severe ME (aged 20, bedbound for the last 6 years)     13 Jan 2006 08:45:53 -0800
[From Claire Wade, re-posted with permission] Hi I filmed a piece on Severe ME for a local TV show, which I thought some people may be interested to see. You can view it by following this link and Save the attachment. When it's saved open it up and it should play. You may need Window's Media Player though. ...

Another Drug that Works     Thu, 12 Jan 2006 14:18:53 -0000
Dextromethorphan or DXM as in Robitussin dry cough syrup. Lay off any SSRIs for a couple of days and drink the whole bottle. This is 10X the dose but many people take 3 or 4 bottles for a "trip". I have tried it myself and had lots of energy and motivation and no depression. I know this is cough mixture "abuse ...

Edition No.3 of the (free) CFS newsletter "Phoenix Rising" now available     11 Jan 2006 13:21:05 -0800
(May be reposted) [Slightly adapted from a message Cort Johnson wrote when sending the newsletter out to subscribers. Tom K.] In this third edition (Nov) we find a CFS researcher publishing a 'novel' that may help explain GWS and CFS. The research section focuses on two studies that may be explain the low b ...

Hi     Wed, 11 Jan 2006 08:03:49 +0000 (UTC)
Hi to those that recognise me and those that don't. I'm writing as I feel in need of some direction I've just come back from a two week trip sating with a friend with my 3 year partner. I fell very ill whilst were away. My partner has said last night she cannot go on seeing me anymore, as it has become t ...

Hi again     Mon, 09 Jan 2006 18:52:14 GMT
Hi can't remember last time I was here........but wish all a happy new year anyway! I'm not doing so good my partner left me beginning of November after a 9yr relationship but I was ill for 7 of them :( I guess he couldn't take it anymore but the strange thing was I was improving.......guess he thought he cou ...

FW: Shopping for ME Research     5 Jan 2006 19:56:09 -0800
[The people who wrote these messages have given permission for them to be reposted. If anyone isn't familiar with MERGE, their website is http://www.meresearch.org.uk ] Has anyone seen this yet? I think it's fantastic. If you go to the ushopugive.com website you can see which stores are participating and how ...

Can you help find me a doctor please?     Thu, 05 Jan 2006 22:48:01 GMT
x-no-archive: yes Dear group, I was wondering if anyone could help me. I am finding it very difficult to find a doctor over here in Brisbane, Australia, who understands and can treat CFS/ME. There is one is particular who specialises (Dr Whiting) however his books are closed and I have done an internet s ...

FreeCycle and David Eather's formula     Wed, 4 Jan 2006 14:11:20 -0000
I've been a member for 3 months but was too slow to actually get anything until yesterday, when 2 items came at once. An ENT doctor from the local hospital dropped off some kitchen things, which was nice but not very exiting. While he was here I had a call from someone offering a reed organ. I had several in ...

2nd edition of (free) CFS newsletter "Phoenix Rising" now available     26 Dec 2005 06:11:02 -0800
Cort Johnson has just sent out the second edition of his free CFS newsletter "Phoenix Rising". "The findings from the Paper of the Month* in October's Phoenix Rising indicate that not only do CFS patients have high levels of oxidative stress but they may be at risk for cardiovascular problem. Read about this ...

Upcoming talk (Feb 18) in Hampshire by Dr. Vance Spence (organised by Invest in ME) (also a reminder of The ME Conference 2006 (May 12, London))     25 Dec 2005 15:38:54 -0800
(Feel free to repost) Invest In ME ( http://www.investinme.org ) present "ME RESEARCH - Making The Breakthrough" - A lecture by Dr. Vance Spence of MERGE Saturday 18th February 2006 13.00 - 15.00 at All Saints Church, Hambledon Road (B2150), Denmead, Waterlooville, Hampshire Click for map locatio ...


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